Patient involvement in research: ensuring their true voice is heard

Involving children and young people in healthcare research holds challenges for nurses, and support for training and formal standards for benchmarking need to be in place

For her dissertation, senior research nurse Heather Rostron examined the attitudes of investigators who recruit children and young people as advisers for research projects. In this extended abstract she presents a summary of her findings.

Background

Patient and public involvement (PPI) with children and young people (CYP) is an increasingly recognised practice in healthcare research and is supported by the National Institute for Health Research’s (NIHR) advisory panel INVOLVE (INVOLVE 2017) . However, there is a lack of evidence of the attitudes towards PPI of investigators whose studies specifically recruit children and young people.

Aim

To determine the views and attitudes of investigators