How patient involvement enhances research into feeding children during bone marrow transplantation
Patients, families and researchers can share their understanding and perspectives of an illness to ensure research is relevant
Patient and public involvement (PPI) in research refers to an active partnership between patients, the public and researchers (National Institute for Health Research (NIHR) and INVOLVE 2012). It can include family members and other people with an interest in the research topic, and can take place at any stage from proposal development to circulation (NIHR 2015).
Patients have perspectives based on their understanding of their illness. They may have different but valuable thoughts about health results from researchers.
Research funders tend to require PPI as a rule of funding. This article describes PPI activities that children, parents, dietitians and nurses undertook to inform the development of a research proposal exploring feeding in children during bone marrow transplantation (BMT)....
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