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Click: DDH UK forum and support group

A Facebook forum and support group has been set up for families of children with developmental dysplasia of the hip.
hip_dysplasia

A Facebook forum and support group has been set up for families of children with developmental dysplasia of the hip.

Developmental dysplasia of the hip (DDH) affects about one in every 1,000 newborn babies and is ten times more likely to occur in families with one or more members who have the condition.

If DDH is not detected and treated early, it can cause a lifetime of pain and interventions. Nevertheless, little psychosocial support is available to children with DDH as they grow into adulthood, or for their parents and carers.

As a result, a community of families affected by DDH has established the DDH UK Forum and Support Group. The groups closed Facebook page offers vital peer support and advice at any time of day, and has grown

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A Facebook forum and support group has been set up for families of children with developmental dysplasia of the hip.

hip_dysplasia
About one in every 1,000 new‑born babies has hip dysplasia. Picture: Science Photo Library

Developmental dysplasia of the hip (DDH) affects about one in every 1,000 new‑born babies and is ten times more likely to occur in families with one or more members who have the condition. 

If DDH is not detected and treated early, it can cause a lifetime of pain and interventions. Nevertheless, little psychosocial support is available to children with DDH as they grow into adulthood, or for their parents and carers.

As a result, a community of families affected by DDH has established the DDH UK Forum and Support Group. The group’s closed Facebook page offers vital peer support and advice at any time of day, and has grown into a valuable discussion board.  

Children’s nurses can also recommend the website to parents and young people. The site now has 361 members from across the world, with moderators in the US and Australia. The moderators respond to queries when UK founder Natalie Trice is unavailable. 

It is important to note that the group offers no medical advice on its site, but welcomes children’s nurses to join it so that they can understand the impact of DDH on families’ lives.  

You can visit the Facebook page here.


About the authors

Natalie Trice is an author, publicist, writer and founder of the DDH UK forum and support group

Linda Milnes is an associate professor in children and young people’s nursing at the University of Leeds

They write on behalf of the RCN Research in Child Heath community

 

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