Analysis

Why is 24/7 community children's palliative care still not widely available?

A new report highlights asignificant lack of 24-hour community care cover for parents of children who have life-limiting conditions. Often parents have no choice but to take their child to the emergency department – a strain for all involved.

A new report highlights a significant lack of 24-hour community care cover for parents of children who have life-limiting conditions. Often parents have no choice but to take their child to the emergency department – a strain for all involved.

Caring for children with life-limiting conditions at home is a 24-hour responsibility for parents, requiring supportive palliative care from community children’s nurses (CCNs).

But a report from the charity Together for Short Lives (TFSL) reveals that one third of English clinical commissioning groups (CCGs) do not fund CCNs to provide palliative care for seriously-ill children at night or weekends. Absence of this support may mean parents have to call an ambulance to take their child to an emergency department, the report claims.

'Inappropriate use of resources'

Katrina McNamara

TFSL’s director of service development, and a former children’s

...

Want to read more?

Unlock full access to RCNi Plus today

Save over 50% on your first three months:

  • Customisable clinical dashboard featuring 200+ topics
  • Unlimited online access to all 10 RCNi Journals including Nursing Children and Young People
  • RCNi Learning featuring 180+ RCN accredited learning modules
  • NMC-compliant RCNi Portfolio to build evidence for revalidation
  • Personalised newsletters tailored to your interests

This article is not available as part of an institutional subscription. Why is this?

Jobs