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Research and commentary

Adolescents' perceptions of healthcare education

Study also explored participation in decision making by children with chronic conditions

Koller D (2017) ‘Kids need to talk too’: inclusive practices for children’s healthcare education and participation. Journal of Clinical Nursing. 26, 17-18, 2657-2668.


This study examined how children and adolescents with chronic medical conditions perceive and experience their healthcare education and participation in personal decision-making.


This study used participatory research methods and an adaptation of ethnography. A total of 26 children and adolescents with chronic conditions in hospital participated from various age groups. All the participants were interviewed. The data was analysed using thematic analysis.


The themes identified were:

Knowledge of illness

There were differences with regard to the participants’ knowledge of their illness and this affected decision-making. Participants with a higher level of knowledge of their illness were able to identify their condition, provide an account of their experience


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