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Meet the UK’s first national lead nurse in neonatal palliative care

Alex Mancini works with three neonatal networks in the UK but when she first started mentioning the idea of neonatal palliative care she was met with disbelief

Alex Mancini works with three neonatal networks in the UK but when she first started mentioning the idea of neonatal palliative care she was met with disbelief

About 20 years ago when Alex Mancini began talking about neonatal palliative care, she was often met with disbelief. The common assumption, she says, was that there was no such thing as neonatal palliative care – there was either death or survival, with little focus on the crucial time in between.

But today neonatal palliative care is recognised as essential in supporting babies with life-limiting conditions and their families – however long or short that period may be.

‘We want families to have choice, consistency and equity of care when their baby isn’t expected to survive,’ says Ms

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