Our clinical nursing articles aim to inform and educate nurse practitioners and students. This is achieved through the publication of peer-reviewed, evidence-based, relevant and topical articles.
Development and validation of a methodology for observing time taken for vital signs
Why you should read this article: • To gain confidence in implementing a multi-site study as a novice researcher • To benefit from the ‘lessons learned’ in a bio-behavioural exploration study • To understand the special needs of child/parent dyad participants Background Novice researchers who aspire to contribute to the body of knowledge concerning rare diseases face unique challenges in developing and conducting studies. These include unknown effect sizes in previous research, limitations in recruitment and enrolment, and managing data from a multi-site sample. Aim To describe the challenges in researching rare diseases and possible solutions using a doctoral student exemplar from a cross-sectional correlational study of fatigue. Discussion The authors discuss the lessons learned from the study, including the challenges in recruitment, communication, collecting biological data and managing data in general. They posit possible solutions, including improving multi-site coordination, feasible methods for exploring sleep and stress, and measures to prevent equipment and data loss. Conclusion Rare populations, such as young survivors of childhood brain tumours, deserve a voice in building the body of knowledge needed for more precise, personalised healthcare. It is possible with foresight for the novice researcher to make such a contribution. Implications for practice Improved knowledge and assessment of symptoms during childhood will improve the detection of health risk factors and enable earlier intervention.
Legitimation criteria enable researchers to maintain quality throughout their studies
How exploratory factor analysis can help define the domains of ontology in critical realism
How to carry out and analyse research interviews informed by psychoanalysis
A reintroduction to concurrent analysis
Validating findings is an important part of research methodology
Consistent and comparable electronic health record systems are important
The research design element should reflect the iterative reality of the process
CGT provides a flexible but systematic approach for multi-ethnic environments
The tools used to examine this concept need to be reliable and valid
Exploring contemporary examples of translating, analysing and presenting focus group data