Clare Warnock and colleagues outline the development of guidance for nurses caring for children and young people experiencing the long-term consequences of treatment

Survival rates for children and young adults with cancer continue to improve, due to advances in therapies, multidisciplinary and supportive care. While treatments are associated with positive outcomes in terms of survival, there can be long-term negative consequences. These are often referred to as ‘late effects’ and may be experienced by patients years after treatment. There is therefore recognition of the need for long-term follow up and support after end of treatment and beyond, and of nurses’ role in such services. This article describes a project to develop a competency framework for nurses providing care to young cancer survivors, regardless of their current age. Generic elements of the framework may be of relevance to adult oncology nurses.