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How to inform service users quickly in dementia care

Nurses and people living with dementia can work together to conduct simple, research studies that inform services

Nurses, people living with dementia and their families can work together to conduct simple, pragmatic research studies that inform services

Allison Bentley, nurse researcher

'As a district nurse and community matron I had supported several families with Lewy body dementia. It was only when I took a research post that I realised people with Lewy body dementia had many distressing physical symptoms as well as memory problems. These symptoms had a significant effect on their quality of life.

'I hadn’t conducted my own research before, but I realised it was important to do a small study. I was also aware that people with Lewy body dementia and their carers had a wealth of experience and it was important for them to be involved in the research.

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