How I balance my nursing degree with a long-term condition
Nursing student Freya Williams explains why her genetic condition will be no barrier to her career, and how her lived experience can enhance her practice
I was diagnosed in 2020 with the connective tissue disorder Ehlers Danlos Syndrome (EDS), a long-term condition that affects the joints, skin and tissues.
I have multiple co-morbidities due to my condition, including digestive problems, and in April 2022 I had a nasojejunal (NJ) tube fitted for all my nutritional requirements. This was during the first year of my degree in children’s nursing, and despite having completed eight months of my programme while managing my long-term health conditions, adjusting to nursing with a nasal feeding tube was an entirely new challenge.
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