By interweaving explanations of the science of lymphoma with reflections on her own experiences of the condition, the author has produced a unique and engaging book that offers a great deal more than many others on the subject.
By interweaving explanations of the science of lymphoma with reflections on her own experiences of the condition, the author has produced a unique and engaging book that offers a great deal more than many others on the subject
This phenomenological study explored the lived experience of people diagnosed with fibromyalgia. Open interviews were conducted with nine people diagnosed with fibromyalgia. All participants outlined long and complex journeys involving ‘a diagnosis of elimination’ and the difficulties of living with an ‘invisible’ illness, which results in loss of friendships and family roles, and places restrictions on daily life. Most participants experienced a general lack of understanding of the condition, such as being told ‘it is in your head’ by healthcare professionals.
Findings reveal the impact of fibromyalgia on people’s lives and the need for responsive, person-centred, supportive services, which primary care nurses are ideally placed to provide.
The authors of this book have written a comprehensive text that demystifies the more scientific aspects of multiple myeloma through the inclusion of figures and images.
This book provides a comprehensive overview of multiple myeloma, enabling nurses to respond effectively to patients’ questions about their illness and treatments.
This article provides nurses with an update on diagnosis, management and care of patients with myelodysplastic syndromes (MDS), a complex group of disorders of the bone marrow. MDS has wide-ranging effects on patients’ lives. Understanding the effect of a diagnosis of MDS on patients’ quality of life is an important part of the nursing role and includes consideration of physical, mental, emotional and social wellbeing. Many treatment options are available and nurses can educate patients on recognising and managing side effects. While there have been promising developments in management, nurses should ensure that patients and their families have a realistic understanding of MDS and ensure that they are aware that treatments other than haematopoietic stem cell transplantation are non-curative.
The treatment of patients with metastatic colorectal cancer has improved significantly in the past two decades. Several new targeted drugs and chemotherapy agents have been approved since the late 1990s, resulting in significant improvements in overall survival. However, these advances have physical, psychological and economic implications for patients and their families as treatment may now extend over many years. Oncology nurses are ideally placed to help patients manage the side effects of treatment through comprehensive assessment, education and prompt management, which will support them to maintain the best possible quality of life.
This article aims to provide nurses with an update of best practice in caring for patients living with a diagnosis of myeloma. Targeted treatments for myeloma have resulted in extended survival for patients. However, extended survival results in disease- and treatment-related side effects that have a profound effect on patients’ quality of life. Nurses can support patients to manage their illness and treatment, and promote an improved quality of life.
<p>Aim To provide an overview of interpretive phenomenology.</p> <p>Background Phenomenology is a philosophy and a research approach. As a research approach, it is used extensively in nursing and ‘interpretive’ phenomenology is becoming increasingly popular.</p> <p>Data sources Online and manual searches of relevant books and electronic databases were undertaken.</p> <p>Review methods Literature review on papers on phenomenology, research and nursing (written in English) was undertaken.</p> <p>Discussion A brief outline of the origins of the concept, and the influence of ‘descriptive’ phenomenology on the development of interpretive phenomenology is provided. Its aim, origins and philosophical basis, including the core concepts of dasein, fore-structure/pre-understanding, world view existential themes and the hermeneutic circle, are described and the influence of these concepts in phenomenological nursing research is illustrated.</p> <p>Conclusion This paper will assist readers when deciding whether interpretive phenomenology is appropriate for their research projects.</p> <p>Implications for research/practice This paper adds to the discussion on interpretive phenomenology and helps inform readers of its use as a research methodology.</p>
<p>Aim To provide a comprehensive overview of the many research approaches related to phenomenology and their philosophical underpinnings.</p> <p>Background Phenomenological research approaches are varied and often difficult to apply appropriately. Some researchers persist in labelling their studies as examples of Heideggerian or Husserlian phenomenology without fully understanding the implications of the underpinning philosophical assumptions.</p> <p>Data sources Methodological sources related to phenomenology as a philosophy and phenomenology as a research approach are used to illustrate the range of phenomenological methods and their philosophical underpinnings.</p> <p>Discussion The origins of phenomenology are the writings of Husserl and the advancement of his thoughts by Merleau-Ponty, Heidegger, Gadamer and Ricoeur. The importance of fully understanding a methodology and its philosophical underpinnings before using it, or claiming to use it, is emphasised. In addition, the variety of phenomenological research approaches that have evolved over the past 50 years are explored and placed in the context of their philosophical underpinnings.</p> <p>Conclusion There is no single way to conduct a phenomenological study. There are many approaches from which researchers can choose. This has resulted in a range of labels and often in different descriptions for the same approach.</p> <p>Implications for research/practice It is essential that researchers planning to use phenomenology are familiar with the many approaches available. This knowledge will help researchers choose the approaches that best suit the aims of their studies.</p>
<p>THIS SECOND edition builds on the first and gives a rich account of Johns’s evolving views from the reflective turn in his first edition to the narrative turn proposed here. The subheadings within each chapter guide the reader but each chapter should be read in its entirety to appreciate fully the unfolding narratives. The book will appeal to practitioners and researchers involved in reflexive narrative research because the style adopted illustrates how theoretical perspectives can be woven in with the narratives.</p>
Patient rehabilitation following lower limb amputation is essential to provide optimum patient outcomes and to improve the amputee’s quality of life. The age of the patient and the stump length or level of amputation emerge as dominant factors affecting the outcome of rehabilitation. A variety of outcome measures are available to assess the patient’s rehabilitative potential to maximise functional ability. This article focuses on the factors affecting rehabilitation, outcome measures to assess rehabilitative potential and the nurse’s role in providing care for patients following lower limb amputation.
Parenting a child with a learning disability is a unique and often demanding experience. The learning disability nurse can play a key role in supporting parents and families by communicating effectively, providing information and working in partnership.
<p>The term ‘reflexivity’, as it applies to nursing, is poorly described and elusive. Yet it represents a new chapter in qualitative research, argues Maura Dowling, closing the door on a belief that distance between researcher and participant is paramount, and providing momentum for a move towards a position where boundaries between the two are surrendered</p>