People with Dementia Speak Out

Several books about the experiences of people with dementia have been published recently, but this one offers a fresh perspective.

A collection of personal accounts of life before and after diagnosis, it is also an anthology of experience and a handbook for professionals who work with people with dementia.

The personal stories are quoted verbatim, which gives them authenticity and uniqueness, with many conveying a sense of triumph and hope.

The author recognises that the accounts may be unrepresentative of the wider population with dementia, but rather than detract from the value of her work, this highlights the diversity of those affected – in fact they highlight the differences in how people live their lives and show that those living with dementia are individuals first and foremost.

The book also includes some interesting appendices about, for example, narrative medicine and the effect of dementia on lesbian, gay, bisexual and trans people.

There are also comprehensive and informative sections at the back of the book about further reading, useful resources and helpful organisations, as well as a glossary and a set of frequently asked questions.

This is essential reading for nurses and other professionals involved in dementia care in any setting.

This article is for subscribers only