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Roald Dahl charity launches its Christmas appeal

Money raised by the charity will be used to fund specialist children's nurses 
Lara Mehmet and Anna Jewitt

Money raised by the charity will be used to fund specialist children's nurses

A schoolgirl with an undiagnosed genetic disorder is fronting a Christmas campaign to fund Roald Dahl specialist children's nurses.

Roald Dahls Marvellous Childrens Charity Christmas Appeal features ten-year-old Lara Mehmet, who is currently starring as Tiny Tim in a production of A Christmas Carol at London's Old Vic Theatre.

Lara was diagnosed with the potentially life-threatening blood condition familial hemophagocytic lymphohistiocytosis (HLH) as a baby.

Although she was cured of HLH after undergoing chemotherapy and a bone marrow transplant, she has an undiagnosed genetic disorder.

Appeal video uses A Christmas Carol

Money raised by the charity will be used to fund specialist children's nurses 


Lara Mehmet with her SWAN nurse Anna Jewitt

A schoolgirl with an undiagnosed genetic disorder is fronting a Christmas campaign to fund Roald Dahl specialist children's nurses. 

Roald Dahl’s Marvellous Children’s Charity Christmas Appeal features ten-year-old Lara Mehmet, who is currently starring as Tiny Tim in a production of A Christmas Carol at London's Old Vic Theatre.

Lara was diagnosed with the potentially life-threatening blood condition familial hemophagocytic lymphohistiocytosis (HLH) as a baby.

Although she was cured of HLH after undergoing chemotherapy and a bone marrow transplant, she has an undiagnosed genetic disorder.

Appeal video uses A Christmas Carol story to show the importance of SWAN nurses

Lara has a Roald Dahl SWAN (syndromes without a name) clinical nurse specialist, Anna Jewitt, who is based at Great Ormond Street Hospital in London.

Taking inspiration from A Christmas Carol, the appeal video looks back at a Christmas past when Lara didn’t have a Roald Dahl nurse and how that affected her mother, Sema.

The film then jumps to Christmas present, where they talk about the positive effect that Ms Jewitt has had on the family.

The charity is asking for donations to continue funding its nurses to help children like Lara.

‘It all changed when we got the support of Anna,' said Lara's mother. 

Roald Dahl charity raises awareness of lesser known genetic disorders

‘She’s been at our side since and we haven’t looked back. Lara and Anna have a special bond, Lara is ready for anything now.’

Ms Jewitt said the role of the Roald Dahl nurse was important because the ‘charity recognises less commonly known disorders and I think it’s important the awareness is out there’.


Find out more

Roald Dahl’s Marvellous Children’s Charity Christmas Appeal


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