New online support for nurses working with motor neurone disease

The RCN has produced a new online support for nurses working with people living with the disease, motor neurone disease.

Motor neurone disease Picture: iStockphoto

Nurses working with people living with motor neurone disease (MND) will benefit from a new online guidance launched today by the RCN.

Best practice in dealing with difficult ethical issues and clinical understanding of the condition will be covered in the resource.

RCN professional lead on long term conditions and end of life Amanda Cheesley said the guidance would help nurses improve their understanding and care for people with MND.

Brain and spinal cord

The disease, which affects the motor nerves or neurones in the brain and spinal cord, affect how a person walks, talks, eats, drinks and breathes and leads to muscle weakness and wasting.

Ms Cheesley said: ‘The huge variety of symptoms and rates of progression can be difficult to treat, but we know how great a difference well-informed nursing can make.

‘This resource aims to share their experiences and those of the nurses who care for them, so that all patients can experience the best care and support. 

‘We would urge nurses to use this resource.’

The resource has been produced in partnership with the Motor Neurone Disease Association.

Further information:

RCN guidance on motor neurone disease 


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