Reviews

Click: Websites providing support for parents of children with learning disabilities when they undergo clinical procedures

Resources for professionals and parents to support children with learning disabilities who are having clinical procedures.

Resources for professionals and parents to support children with learning disabilities who are having clinical procedures.

Click
Picture: iStock

It is known that children and young people with learning disabilities, also known as intellectual disabilities, can experience high levels of fear and distress when undergoing clinical procedures.

Parents can also experience anxiety, difficulty and uncertainty when accompanying and supporting their children before, during and after these procedures.

Two resources have been developed to try and improve children and young peoples’ experiences of clinical procedures.

The Peninsula Cerebra Research Unit has produced a short report for professionals and parents. The report, entitled Reducing Distress and Improving Cooperation with Invasive Medical Procedures for Children with Neurodisability, provides practical information and guidance.

What? Why? Children in Hospital is a charitable organisation founded in 2015 that has set up a website called Preparing for Hospital to prepare parents, carers and children for positive hospital experiences.

The website includes videos that show children what they can expect during a range of procedures, as well as resources and reports that share best practice with professionals and parents.

The website has information that would be useful for all parents of children with intellectual disabilities.


Compiled by Greg Cigan, PhD student, and Lucy Bray, reader in children, young people and families, Edge Hill University, on behalf of the RCN’s Research in Child Health community

This article is for subscribers only

Jobs