There is a glaring lack of NHS funding for 24/7 children’s community palliative care. Helen House hospice in Oxford provides this care, but depends on public donations to do it. Its sister hospice Douglas House caters for people aged over 18 and is set to close due to a lack of funding. Sabine Schwaebisch explains the holistic care offered at Helen House and why it is at the forefront of compliance with national guidance