What hope means for families of children with rare diseases in clinical trials
Children taking part in clinical trials are often described as being given ‘hope’. Is this useful as a coping mechanism or does give rise to misconceptions and possibly false hope?
In this extended abstract, Northumbria University graduate tutor and paediatric nurse Claire Camara outlines the main findings from a literature review
Due to the extended survival of children and young people that modern medicine has enabled ( Moreira et al 2013 , Ferro et al 2014 ) there is a rising prevalence of life-limiting conditions in the UK (...
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