We are aware some users might find it difficult to log into our site today. We are working on this issue and hope to have it resolved shortly.
Research in practice

Understanding parents’ experiences of caring for a child with congenital heart disease

Literature review of the impact of caring for a child with congenital heart disease

Congenital heart disease (CHD) effects one in every 8,000 births in the UK and across Europe (Franklin et al 2015). It can be linked to genetic or chromosomal abnormalities and the direction of treatment depends on the complexity of the defect and is adapted for each child (Yuan and Jing 2009). Caring for a child with CHD can affect the emotional, social and financial aspects of the parents’ quality of life (Azhar et al 2016). One fifth of parents struggle to cope and after their child’s diagnosis parents express signs of depression. Marital relations can become strained due to the emotional and financial burden of CHD (Lemacks et al 2013). Providing suitable support to parents and families is an important part of the care of a child with CHD and this review aimed to explore what issues were significant and identified by


Want to read more?

Unlock full access to RCNi Plus today

Save over 50% on your first three months:

  • Customisable clinical dashboard featuring 200+ topics
  • Unlimited online access to all 10 RCNi Journals including Nursing Children and Young People
  • RCNi Learning featuring 180+ RCN accredited learning modules
  • NMC-compliant RCNi Portfolio to build evidence for revalidation
  • Personalised newsletters tailored to your interests

This article is not available as part of an institutional subscription. Why is this?