Research and commentary

What parents need to know about cystic fibrosis adult services

Parents managing a child’s cystic fibrosis need help when they transition to adult services

Parents of children with cystic fibrosis are usually heavily involved in the management of their child’s care. This article reviews a study of what information they need when their child moves to adult services.

Coyne I, Malone H, Chubb E et al (2018) Transition from paediatric to adult healthcare for young people with cystic fibrosis: parents’ information needs. Journal of Child Health Care. doi.org/10.1177/1367493518768448

Aim

To identify the information needs of parents of young people with cystic fibrosis on the process of transition to adult services and examine to

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