Research and commentary

What parents need to know about cystic fibrosis adult services

Parents managing a child’s cystic fibrosis need help when they transition to adult services

Parents of children with cystic fibrosis are usually heavily involved in the management of their child’s care. This article reviews a study of what information they need when their child moves to adult services.

Coyne I, Malone H, Chubb E et al (2018) Transition from paediatric to adult healthcare for young people with cystic fibrosis: parents’ information needs. Journal of Child Health Care.


To identify the information needs of parents of young people with cystic fibrosis on the process of transition to adult services and examine to


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