Research and commentary
Waiting on a newborn’s result from a heel prick test is an anxious time for parents
Healthcare professionals’ and parents’ experiences of the confirmatory testing period
In 2015, the UK National Screening Committee adopted screening for four of the five additional conditions in the newborn bloodspot screening programme, which means more rare diseases can be found, but what does this mean for families?
Aim
The aim of this paper was to determine healthcare professionals’ (HCPs) and parents’ views on, and experiences of, communication and interaction while waiting for confirmation of positive expanded newborn screening (NBS) programme results.
Method
Semi-structured interviews were undertaken with the parents of children who
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