Sensitive diagnosis lessens parents’ upset over cystic fibrosis
Research shows that the way parents are told their child may have cystic fibrosis can affect the depth and duration of their distress
Study examines the impact on parents of receiving an inconclusive diagnosis that their newborn may have the genetic condition cystic fibrosis.
Johnson F, Southern K, Ulph F (2019) Psychological impact on parents of an inconclusive diagnosis following newborn bloodspot screening for cystic fibrosis: A qualitative study. International Journal of Neonatal Screening. 5, 2, 23. doi: org/10.3390/ijns5020023
Blood spot screening of newborns (NBS) seeks to identify presymptomatic babies affected by genetic or congenital conditions, and early diagnosis leads to better health outcomes for the child ( Public Health England...
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