Research and commentary

Sensitive diagnosis lessens parents’ upset over cystic fibrosis

Research shows that the way parents are told their child may have cystic fibrosis can affect the depth and duration of their distress
Picture shows a newborn baby undergoing blood spot screening. Research shows that the way parents are told after screening that their child may have cystic fibrosis can affect the depth and duration of their distress.

Research shows that the way parents are told their child may have cystic fibrosis can affect the depth and duration of their distress

Study examines the impact on parents of receiving an inconclusive diagnosis that their newborn may have the genetic condition cystic fibrosis.

Johnson F, Southern K, Ulph F (2019) Psychological impact on parents of an inconclusive diagnosis following newborn bloodspot screening for cystic fibrosis: A qualitative study. International Journal of Neonatal Screening. 5, 2, 23. doi: org/10.3390/ijns5020023

Blood spot screening of newborns (NBS) seeks to identify presymptomatic babies affected by genetic or congenital conditions, and early diagnosis leads to better health outcomes for the child ( Public Health England

...

Want to read more?

Unlock full access to RCNi Plus today

Save over 50% on your first three months:

  • Customisable clinical dashboard featuring 200+ topics
  • Unlimited online access to all 10 RCNi Journals including Nursing Children and Young People
  • RCNi Learning featuring 180+ RCN accredited learning modules
  • NMC-compliant RCNi Portfolio to build evidence for revalidation
  • Personalised newsletters tailored to your interests

This article is not available as part of an institutional subscription. Why is this?

Jobs