More psychosocial support needed for parents caring for a child with cystic fibrosis
Fitzgerald C, George G, Somerville R et al (2018) Caregiver burden of parents of young children with cystic fibrosis. Journal of Cystic Fibrosis. 17, 1, 125-131.
Cystic fibrosis is an inherited disease caused by mutations in the cystic fibrosis trans-membrane regulator (CFTR) gene, leading to a deficiency or absence of functional CFTR proteins at the apical membrane of epithelial cells.
Few studies have explored the impact of informal care given to parents when caring for a child with cystic fibrosis.
The aim of this study was to examine caregiver burden and quality of life (QoL) of parents of young children with cystic fibrosis using the Care-related Quality Assessment of Life (CarerQol) questionnaire, and factors associated...
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