Research and commentary

More psychosocial support needed for parents caring for a child with cystic fibrosis

Study examines caregiver burden and quality of life of parents who have children with cystic fibrosis

Fitzgerald C, George G, Somerville R et al (2018) Caregiver burden of parents of young children with cystic fibrosis. Journal of Cystic Fibrosis. 17, 1, 125-131.

Background

Cystic fibrosis is an inherited disease caused by mutations in the cystic fibrosis trans-membrane regulator (CFTR) gene, leading to a deficiency or absence of functional CFTR proteins at the apical membrane of epithelial cells.

Few studies have explored the impact of informal care given to parents when caring for a child with cystic fibrosis.

Aim

The aim of this study was to examine caregiver burden and quality of life (QoL) of parents of young children with cystic fibrosis using the Care-related Quality Assessment of Life (CarerQol) questionnaire, and factors associated

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