Transition from child to adult care for someone with severe learning disabilities

Learning disability nurses should appreciate the hurdles some parents have to negotiate

Viki Ainsworth describes the obstacles parents must negotiate when their child makes the transition to adult care

Transition is a term that strikes fear into the heart of any parent or carer who is looking after someone with severe learning disabilities, not least because of the sheer number of transitions that need negotiating.

First, there is post-16 transition from school to college – this one should be relatively straightforward, as schools and colleges work closely together and all the arrangements still come under the education, health and care plan, so it’s lots of form filling, but comes with support from people who know how it works.

Then there is the transition from children’s to adult services. This one caught me out, which may seem odd given that I realised my daughter was turning


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