Personalised end of life care for people with learning disabilities is the gold standard
Leading learning disabilities research advocate Irene Tuffrey-Wijne uses her role to ‘shout about’ the need to involve service users in healthcare decisions that affect them
Irene Tuffrey-Wijne has made it her life’s mission to campaign on behalf of people with learning disabilities and autism when it comes to end of life care and bereavement.
Renowned worldwide for her studies on palliative care for learning disability service users, Professor Tuffrey-Wijne has fought to ensure that their needs, concerns and fears are heard and addressed effectively.
Ever since she was a young agency nurse at a large psychiatric hospital in the Netherlands – where she was instructed to insert a nasogastric tube to force-feed a woman with Down’s syndrome whom other staff were restraining – she has fought to ‘turn patients into people'.
The estimated number of people with learning
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