Motor Neurone Disease
About this resource
This resource has been developed for you by the Royal College of Nursing (RCN) in conjunction with the Motor Neurone Disease Association and is designed to offer you support in your care for people living with motor neurone disease.
Who is it for?
This resource is for any registered nurse, student nurse, health care assistant (HCA) or assistant practitioner working in any health care setting or specialism.
Why was this resource developed?
MND is fatal and progressive; families, carers and health and social care professionals must respond to complex and increasing care needs. We aim to give you an understanding of your role in caring for people with MND and an appreciation of the significant impact this condition has on people living with the disease. Both of these will help inform your practice. You can work through this resource all at once or in ‘bite sized’ pieces of learning whenever it is convenient for you.
After completing all the sections, you should:
- have an improved understanding of what MND is, and the red flags for its diagnosis
- have increased awareness of the symptom management and treatments that are available
- appreciate the importance of coordination and a multi-disciplinary approach to achieving good care for people living with MND
- recognise the importance of keeping and sharing accurate records with your colleagues in the multidisciplinary team
- have explored the importance of advance planning and timely support for changing symptoms
- have considered the impact of a diagnosis of MND on a person and their family and carers
- know how to look after yourself as a professional when nursing during this and other challenging cases
- know where to go for further information