References

References for both resources

  • Principles of Nursing Practice: (RCN 2010)
  • Starved of Care : Investigation into Care of Mrs V (Mental Welfare Commission for Scotland 2011)
  • Report of the Mid-Staffordshire NHS Foundation Trust Public Inquiry (Robert Frances 2013)
  • More Care Less Pathway – Neuberger (2013)
  • Compassion in Practice (CNO England 2012)
  • One Chance to Get it Right: Improving peoples experience of care in the last few days and hours of life (Leadership Alliance for the care of dying people 2014)
  • Caring for people in the last few days and hours of life (SG 2014)
  • The Vale of Leven Hospital Inquiry (The Rt.Hon. Lord Maclean 2014)
  • Dying without dignity: Investigation by the Parliamentary and Health Service Ombudsman into complaints about end of life care (May 2015)
  • Palliative and end of life care Priority Setting Partnership (PeolcPSP) Putting patients, carers and clinicians at the heart of palliative and end of life care research James Lind Alliance – (Jan 2015)

+ Bibliography / suggested reading for end of life care resource

Adams J, Andersron RA, Docherty SL, Tulsky JA, Steinhauser K E, & Bailey DE (2014) Nursing strategies to support family members of ICU patients at high risk of dying Heart and Lung 43, 5 pp406 – 415

Baile WF, Buckman R, Lenzi R, Glober G, Beale EA & Kudelca AP(2000) SPIKES: A six step protocol for delivering bad news to the patient with cancer Oncologist 5 pp302-311

Buckle J, Dwyer SC & Jackson M (2010) Qualitative bereavement research incongruity between the perspectives of participants and research ethics boards International Journal of Research Methodology 13 2 pp111-125

Clark D, Armstrong A, Graham F, Carnon A & Isles C (2014) Imminence of death among hospital inpatients: a prevalence study Palliative Medicine doi:10.117/0269216314526443

Clayton JM, Butow &Tattersall MHN (2005) The needs of terminally ill cancer patients versus those of caregivers for information regarding prognosis and end of life issues Cancer 103 pp1957-1964

Connelly M, Perryman J, McKenna Y, Orford J, Thomson L, Shuttleworth J,& Cocksedge S (2010) SAGE and THYME : a model for training health and social care professionals in patient -focussed support Patient Education and Counselling 79 1 pp87-93

Corbin J (2007) Is caring a lost art in nursing? International Journal of Nursing Studies 45 pp163-165

Crawford P and Brown B (2011) Fast healthcare: brief communication, traps and opportunities Patient Education and Counselling 82 pp3-10

Eliott JA & Oliver in (2009) Hope, life and death: a qualitative analysis of dying cancer patients’ talk about hope Death Studies 33 pp609-638

Ellis J (2013) Thinking beyond rupture: continuity and relationship in everyday illness and dying experience, Mortality: promoting the interdisciplinary study of death and dying DOI:10.1080/13576275.2013.819490

Eyre S (2010) Supporting informal carers of dying patients: the district nurse’s role Nursing Standard 24 22 pp43-47

Dowding D (2002) Interpretation of Social Judgement Theory in Thomson C & Dowding D (eds) Clinical Decision-Making and Judgement in Nursing Chapter 5 Edinburgh/Churchill Livingstone

Ellershaw J (2003) Care of the dying patient in the last hours or days of life: Commentary: A good death is possible in the NHS BMJ 326 7379.30

Folkman S (2010p904) Stress, coping and hope Psycho-oncology 19 pp901-908

Folkman S (2010) Stress, coping and hope Psycho-oncology 19 pp901-908

Frosch D, Legare F Fishbein M & Elwyn G (2009) Adjuncts or adversaries to shared decision-making? Applying the integrative model of behaviour to the role and design of decision support interventions in healthcare interactions. Implementation Science 4 73

GMC (2008) Consent: Patients and Doctors Making Decisions Together. Guidance for Doctors London/General Medical Council

Gustafasson C, Asp M & Fagerberg I (2007) Reflective practice in nursing care: Embedded assumptions in qualitative studies International Journal of Nursing Practice 13 pp151-160

Hauke D & Reiter-theil et al (2011) The role of relatives in decisions concerning life-prolonging treatment inpatients with end-stage malignant disorders: informants, advocates or surrogate decision-makers Annals of Oncology 22 pp2667-2674

Herth K (1990) Fostering hope in terminally ill people Journal of Advanced Nursing 15 pp1250-1259

Hwang SY, Yen M, Lee BO, Huang BC & Tseng HF (2009) A critical thinking disposition scale for nurses: a short form Journal of Clinical Nursing 19 pp 3171-3176

Johns C (1994) The Burford NDU Model Caring in Practice Chapter 2 Blackwell Science /Oxford

Keller M & Sommerfeldt S (2004) Recognition of distress and psychiatric morbidity Annals of Oncology 15 pp12433-1249

Leighl NB, Butow P and Tattersall MHN (2004) Treatment decision aids in advanced cancer: when the goal is not cure and the answer is not clear Journal of Clinical Oncology 22 9 pp1759 1762

Maguire P and Pitceathly C (2003) Key communication skills and how to acquire them British Medical Journal 325 pp697-700

Mann K, Gordon J & Macleod A (2009) Reflection and reflective practice in health professions education: a systematic review Adv. in Health Science Education 14 pp595-621

McCaughan D (2002) in Thomson C & Dowding D (2002) Clinical Decision Making and Judgement in Nursing ch6 Edinburgh/Churchill Livingstone

Mullick A, Martin J & Sallnow L (2013) Clinical review: An introduction to advance care planning in practice BMJ 347:f6064

Mullins LL, Cote MP & Fuemmeler F et al (2001) Illness intrusiveness, uncertainty, and distress in individuals with multiple sclerosis Rehabilitation Psychology 46 2pp139-158

NICE (2004) Improving Supportive and Palliative Care for Adults with Cancer: The Manual p15 London/National Institute for Clinical Excellence web: www.nice.org.uk

Paley J, Cheyne H, Dalgleish L, Duncan EA, Niven D & Niven CA (2007) Nursing’s ways of knowing and dual process theories of cognition Journal of Advanced Nursing 60 6 pp692-701

Ray RA, Brown J & Street A F (2014) Dying with motor neurone disease, what can we learn from family caregivers? Health Expectations 17 4 pp466-476

Reilly D (2006) Creating the Therapeutic Encounter: Some comments and references on healing. The encounter begins before the encounter Some references.DOC UPDADTES: www.adhom.com

Ryan P (2005) Approaching death: a phenomenological study of five older adults with advanced cancer Oncology Nursing Forum 32 6 pp1101-1108

Sanders-Dewey NEJ, Mullins LL & Chaney JM (2001) Coping style, perceived uncertainty in illness, and distress in individuals with Parkinson’s disease and their caregivers Rehabilitation Psychology 46 4 pp363-381

SG (2011) Shaping Bereavement Care: A Framework for Bereavement Care Edinburgh /Scottish Government

SG(2011) Living and Dying Well: Building on Progress Edinburgh /Scottish Government

Thomsen TG, Rydahl-Hansen S & Wagner L (2011) How to be a patient in a palliative life experience? A qualitative study to enhance knowledge about coping abilities in advanced cancer patients Journal of Psycho-Social Oncology 29 3 pp254-273

http://www.england.nhs.uk/wp-content/uploads/2014/12/nhs-cip-2yo.pdf

[1] Graves, D. (2009) Talking with Bereaved People- an approach for structured and sensitive communication. London. Jessica Kingsley Publishers.

[1] Parkes, C, M. (2006) Love and Loss: the Roots of Grief and its Complications (2006) Hove. Routledge

Related articles

The aims of excellent end of life care (EOLC) and nursing...
Nursing Management
Feb 2017
Lead nurse Victoria Thorne explains how redesigning...
Nursing Standard
Jan 2017
An electronic record-sharing system is helping to integrate...
Nursing Older People
Jul 2017